Huntington's Disease Chorea: Managing Day by Day
Taking care of a family member or friend living with Huntington’s disease (HD) can be physically and emotionally challenging. You may feel isolated, alone and overwhelmed.
Individual results may vary. Xenazine may not be effective in reducing choreic movements in all HD patients. Please review the Important Safety Information, including Boxed Warning about the increased risk of depression and suicidality, below.
Sue and Jeff’s Story
Sue and Jeff share their experiences living with Huntington’s disease, from their initial reactions to her diagnosis to working with their doctor to find treatment for her HD chorea symptoms.
Caregivers Discuss Considering HD Chorea Treatment
Considering treatment for chorea associated with Huntington’s disease? Hear from caregivers about considering HD chorea treatment
Here are some additional suggestions that might help.
Break down tasks into steps. Making everyday activities more manageable can help your loved one maintain some independence. But be ready to assist when needed.2
Learn how to communicate in a new way with your loved one. Speak clearly and in short sentences. Give your loved one time to think and respond.2
A physical therapist can teach you appropriate and safe exercises that enhance strength, flexibility, balance and coordination. These excercises can help maintain mobility as long as possible and may reduce the risk of falls.3
Maintain proper nutrition. Patients with Huntington’s disease can burn extra calories due to the movements of chorea, so it is important that they get adequate nutrition to maintain body weight.3 Ask your doctor or nutritionist if extra vitamins or supplements might be necessary.
Select foods that are easier to eat in order to minimize difficulty with chewing and swallowing. Utensils designed for people with limited fine motor skills and covered cups with straws or drinking spouts can also help.3
Lessen the risk of falls and injury due to balance problems. Remove area rugs, install grab bars in bathrooms, and clear rooms of sharp or breakable objects.2