HD Organizations and Events
Find an Educational Event
For information in your area — including support groups, educational meetings, conferences and fundraising events — you can search the Huntington’s Disease Society of America (HDSA) events. They are all designed to help raise awareness and give you and your loved one the opportunity to learn more and connect with others affected by HD.
Here are some resources for patients, caregivers and family members affected by Huntington’s disease (HD).
Huntington’s Disease Society of America is a health organization dedicated to improving the lives of people with HD: www.hdsa.org
Huntington’s Disease Lighthouse Families provides the latest news about the diagnosis, treatment, care, research and community of HD: www.hdlf.org
Hereditary Disease Foundation is a nonprofit, basic science organization dedicated to the cure of genetic diseases: www.hdfoundation.org
HOPES (Huntington’s Outreach Project for Education, at Stanford) is a student-run project at Stanford University dedicated to making scientific information about HD more accessible to patients and the public: www.stanford.edu/group/hopes
Huntington Study Group brings together clinical and basic scientists, individuals and families affected by HD, advocacy groups, and others in the HD community to find and develop treatments that make a difference in the lives of those affected by HD: www.huntington-study-group.org
Huntington’s Disease Drug Works provides information on present treatment options, drug developments and clinical trials: www.hddrugworks.org
National Institutes of Health (NIH) provides links to information on Huntington's disease and chorea from top government agencies: http://www.ninds.nih.gov/disorders/huntington/huntington.htm