How to Get Xenazine® (tetrabenazine)
If you and your doctor decide that Xenazine is right for you, your doctor will fax a prescription form to the Xenazine Information Center (XIC).
A dedicated team is available at the XIC to help you or your loved one through the prescription process. You will be able to talk to a nurse at the XIC to ask questions that you may have about Xenazine.
Step 1: Fill out a treatment form
Your doctor will complete, sign and fax the Xenazine Treatment Form to the XIC. This form contains information about you, your insurance, your prescription and instructions on how to take Xenazine. You or your caregiver will also be asked to sign this form.
Step 2: Obtain insurance verification
Individual results may vary. Xenazine may not be effective in reducing choreic movements in all HD patients. Please review the Important Safety Information, including Boxed Warning about the increased risk of depression and suicidality, below.
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If you have prescription insurance, an XIC representative will contact your insurance company to see whether your insurance plan will cover Xenazine. The XIC representative will then call you to discuss your co-pay amount.
If you have concerns about paying for Xenazine, you should discuss them with the XIC representative, who will explain financial assistance programs that are available.
Step 3: Receive medication mailed from a specialty pharmacy
Once your insurance coverage is verified, a specialty pharmacy will fill your Xenazine prescription based on your doctor’s instructions. The exact specialty pharmacy that will send your medication depends on your insurance plan. The pharmacy could be Accredo, Caremark, Curascript, or Advanced Care Scripts (ACS).
The specialty pharmacy will also collect any co-payments due and mail your prescription, along with a Medication Guide, to either your home or your doctor’s office as directed on the treatment form.
You may receive your first Xenazine prescription within five days after the physician’s office faxes a completed treatment form.* The specialty pharmacy may also send you refill reminders to ensure that you do not stop or forget to take your medication. It is important to always return calls from specialty pharmacies. Specialty pharmacies cannot deliver refills if they can't contact you.
Always discuss any concerns or changes in how you take your medication with your doctor.
Three important reminders
Remember, getting your Xenazine every month is easy if you keep in mind these three important steps:
- A representative from the XIC will call to verify your prescription, check on your insurance coverage and explain that a specialty pharmacy will handle your prescription.
- Your specialty pharmacy will call about your shipment of Xenazine. The pharmacy will also call when you need a new prescription from your doctor.
- Returning phone calls from your doctor, the XIC and specialty pharmacy can ensure that you’ll receive your Xenazine when you need it.
Your contact list
There may be times when you have questions for your doctor, the XIC or your specialty pharmacy, but who’s the best person to call?
Print and fill out this contact sheet. Fill in the names of important people in your care network to help you determine whom to call and when in one simple document.
*Program not available in all states.