Adjusting your Xenazine dose
When you start taking Xenazine, your doctor will regularly increase the number or strength of your tablets to find the right dose that reduces chorea associated with Huntington's disease (HD). This process, known as titration (tie-TRAY-shun), is a very important part of your treatment plan. If your doctor thinks you need to take more than 50 mg of Xenazine each day, you will need to have a blood test to see if a higher dose is right for you.
Individual results may vary. Xenazine may not be effective in reducing choreic movements in all HD patients. Please review the Important Safety Information, including Boxed Warning about the increased risk of depression and suicidality, below.
Sue and Jeff’s Story
Sue and Jeff share their experiences living with Huntington’s disease, from their initial reactions to her diagnosis to working with their doctor to find treatment for her HD chorea symptoms.
Harry and Delraye's Journey with HD
Watch Harry and Delraye discuss their journey with Huntington’s disease, from their experiences with chorea symptoms to interactions with their healthcare team.
Follow the dosing schedule provided by your doctor to help you keep track of when and how much Xenazine to take. The right dose of Xenazine may be different for every person.
Be sure to contact your doctor if you are experiencing any side effects or if Xenazine is not working.
Do not stop taking Xenazine without talking to your doctor first. Call your doctor for medical advice about side effects. You may report side effects to the Food and Drug Administration (FDA) at 1-800-FDA-1088.
Getting and paying for Xenazine
If you and your doctor decide that Xenazine is right for you, your doctor will fax a prescription form to the Xenazine Information Center (XIC). Your Xenazine prescription will be coordinated through the XIC and will be mailed to you by a specialty pharmacy. It is important to always return calls from the XIC and specialty pharmacies. Specialty pharmacies can only deliver refills if they can reach you. Find out more about getting your prescription.
If you have concerns about paying for your medication, please learn about financial help that may be available for you. Here you will find information about the REACH program and how the Xenazine Information Center can assist you.
Talking with your doctor and getting support
Continue to follow up with your doctor even after you’ve been prescribed treatment. We have some tips for talking with your doctor and creating a good treatment plan for you and your caregiver.